I’m sharing our story so other people who have had Covid or have family member or friends who had are aware of how bad it really is.
Chris and I are officially long-haulers after having Covid . We caught COVID when we evacuated for the wildfires. It really hit on October 10th and while we’re a little better now, the long term effects are horrible. We spent an hour on Sunday responding to a survey for the University College of London’s long-hauler study, the biggest one yet undertaken anywhere in the world.
Here’s what life is like in our house…
We sleep sitting up in our recliners so we can breathe.
We take pills round the clock, setting an alarm because forgetting them makes us miserable.
The house is a mess because we don’t have the energy to do even a little cleaning. We do what we can, when we can, but the fur bunnies are overtaking us.
We order in our dinner meals because we don’t have the strength to stand and cook. That’s a real issue in a little town like ours because we’re limited to fast food. We’re longing for something fresh and real.
We get all our groceries delivered, but just getting them in from the garage and putting them away is a whole day job. Between the exhaustion, wheezing and weak muscles, it’s a real effort.
Chris really struggles with getting the trash out on the curb every Monday. The trash and recycling bins are still out there because she don’t have the energy to bring them back in.
Any activity that involves bending over, like doing the laundry or cleaning the cat litter, takes planning because of what it does to our breathing.
We haven’t had a shower since this hit because it takes way too much energy to get undressed, sit in the shower, dry off and get dressed again. We wash our hair in the laundry room sink and do sponge baths.
We haven’t picked up our snail mail for weeks now because it requires a walk to the car, driving half a block to the mailbox and walking back in from the car.
That’s just a little of what it’s like living with the long term effects of COVID. It has diminished our lives beyond anything we could dream of. There is no cure, no idea of when this will get better. We’re past the huge exhaustion, the hair falling out, the mental confusion and fun stuff like that. But the lungs take a beating with this and they don’t spring back.
Johns Hopkins has recommendations for mild breathing exercises, things you would laugh at for their simplicity but that are difficult for us. They also recommend lots of fluids and rest. Lots of rest. Restricting physical activity, no exercise. If you start feeling better and walk just a little more than normal (like 10 feet more) it can throw you back days in your recovery.
Long term prognosis? There is none. There are too many unknowns.
Here is a video on Long Haulers. A co-worker of Chris sent it out, because one of her co-workers friends is in it. Chris and I will watch it today after she gets off work.
I’ve gathered a list of challenges and their hosts. So if you know a challenge host, please direct them to my blog. Feel free to contact me anytime. I hope everyone will be able to use my lists.
Qi (energy) hugs